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Removing Your 23andMe Genetic Data: A Guide Following Recent Consumer Alert

by NY Review Team
Removing your 23andme genetic data: a guide following recent consumer

23andMe Files for Bankruptcy: Essential Consumer Alert

NEW YORK – In a significant development, 23andMe, the prominent genetic testing service, has filed for Chapter 11 bankruptcy protection, prompting New York Attorney General Letitia James to issue a warning to customers. She advises individuals to take swift action to safeguard their genetic information, urging them to delete their data and destroy any DNA samples they may have submitted.

The Situation Unfolding

Amid its bankruptcy proceedings, 23andMe is seeking to sell “substantially all of its assets” as part of a court-approved reorganization plan. This situation raises serious concerns regarding the privacy and security of sensitive genetic information stored by the company.

“New Yorkers’ genetic data is sensitive information that must be protected at all costs.”

— New York Attorney General Letitia James

Steps to Delete Your Data from 23andMe

If you are a customer of 23andMe and wish to delete your genetic information, follow these instructions:

  1. Log in to your 23andMe account on their official website.
  2. Navigate to the “Settings” section within your profile.
  3. Scroll to the “23andMe Data” section at the bottom of the page.
  4. Click “View” next to “23andMe Data.”
  5. If desired, download your data for personal storage before deletion.
  6. Locate the “Delete Data” section.
  7. Click “Permanently Delete Data.”
  8. Confirm your request via the email link you will receive from 23andMe.
  9. For assistance, New Yorkers can contact James’ office.

Managing Saliva Samples and Consent Withdrawal

Customers who have previously opted to store their saliva sample with 23andMe can change this preference or withdraw consent for research usage from the “Preferences” and “Research and Product Consents” sections in their account settings.

Background on 23andMe’s Financial Troubles

Founded in 2006, 23andMe aimed to revolutionize genetic testing and provide insights into health and ancestry. However, the company faced serious challenges, including a 2023 data breach that affected nearly 7 million users. Financial struggles compounded these issues, ultimately leading to its bankruptcy filing. Recently, co-founder Anne Wojcicki stepped down as CEO but plans to remain involved in the company as a board member and intends to bid on the company’s assets during the sale process.

Why You Should Consider Deleting Your Data

Attorney General James emphasizes the critical nature of genetic data security. In her statement, she highlights the potential risks associated with the bankruptcy, stating, “New Yorkers’ genetic data is sensitive information that must be protected at all costs.” This sentiment is echoed by California Attorney General Rob Bonta, who has also informed consumers of their rights amidst 23andMe’s financial instability.

Future Implications

As 23andMe navigates its Chapter 11 proceedings, it has secured $35 million in debtor-in-possession financing to maintain operations. However, concerns regarding the management of customer data remain paramount, especially as the company’s future ownership becomes uncertain.

Source: This article utilizes reporting from New York Attorney General Letitia James’ office and the Associated Press.

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